PANS PANDAS UK

PANS PANDAS UK Logo

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

One estimate suggests that up to 1 in 200 children suffer from this condition.

  • Resources for parents including diagnostic criteria and details of local support groups. 
  • Resources for Medical professionals  
  • Resources for teachers and Schools 
  • Teacher training package 
  • Facebook group for parents/caregivers 
  • Facebook group for Young People age 12-17 with the condition. 
  • Facebook group for Adults 
  • Links to further Research 
  • Advocacy and support from the charity 

Who to contact

Contact Name
Paula Scott
Contact Position
PA to Chair of Trustees and Community Support Executive
Telephone
07425856181 07425856181
E-mail
paula.scott@panspandasuk.org
Website
PANS PANDAS UK website
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Facebook
PANS PANDAS UK Facebook
Twitter
PandasPans
Notes

Any Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  Affected children can be in mainstream, alternative, specialist provision or electively home educated. 

View our Facebook support group for parents or carers looking after a child affected by the conditions. 

We also have an Adults Facebook support group for adults who are affected by the conditions.  

Where to go

Notes

All of Staffordshire covered.  We provide support via our Facebook group PANS PANDAS UK.

Costs

Details
Free at point of access, supported through the PANS/PANDAS UK Charity.

Availability

Referral required
No
Referral Details

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

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